By Emily Mullin – Wired –
“It was a circus, bouncing from specialist to specialist and constantly desecrating my body with endless amounts of prescription pills, all in the hopes of finding a sliver of what it feels like to be alive,” Olaghere told an advisory committee to the US Food and Drug Administration in October.
When the opportunity came to participate in a clinical trial that would use Crispr gene editing in an attempt to permanently fix his disease, he didn’t hesitate. Now, more than three years after getting the one-time treatment, Olaghere is virtually pain-free. “My quality of life has soared to new heights,” he said during his testimony.